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Patient-written guide

Caring for someone at home: practical ways to make life easier

Caring for someone at home is a strange job because nobody really hands you the job description.

One minute you are making tea. The next you are keeping track of appointments, fetching medication, moving cushions, answering messages and trying to remember what somebody said at discharge three days ago.

The aim is not to become a nurse. It is to make everyday life easier while the actual clinical decisions stay with the healthcare team.

And it can be frightening. Looking after somebody who is genuinely unwell can feel like a huge responsibility, especially when you are tired too. If you are struggling, say so. Ask family or friends to share the load where that is possible, and use the healthcare team or contact route you were given when you need clinical guidance. You are not meant to quietly become an entire support service on your own.

Written by The Sick List patient collective · Last reviewed

Start with what they actually need

People often ask “what can I do?” and then accidentally create another decision for the person who is ill.

Better questions are smaller:

  • Do you want me to sort the washing?
  • Shall I make sure your charger and water are next to you?
  • Do you want me to come to the appointment and take notes?
  • Is there anything you need picked up while I am out?

Specific help is easier to say yes or no to.

Make the room do some of the work

Set up the space they actually use so the basics are within reach.

Phone, charger, glasses, tissues, water, remote control, notebook, whatever they have been told to take or use — put it somewhere sensible.

Do not reorganise the whole house like an overexcited property programme. The goal is less reaching, less hunting and fewer unnecessary trips across the room.

If there are things they use every day on high shelves or in awkward cupboards, temporarily move them.

Keep information in one place

You do not need a colour-coded command centre.

One notebook or folder is enough for:

  • Appointment details.
  • Questions to ask.
  • What somebody told you at a clinic or ward round.
  • Contact numbers you were given.
  • Medication information supplied by the healthcare team.
  • Things that need doing or bringing.

Write things down at the time. Caring brain is no better at remembering six separate conversations than patient brain is.

If you go to an appointment together, agree beforehand whether they actually want you taking notes or speaking up. Helpful and steamrolling are not the same thing.

Help without taking over

Being ill can make people feel as though every tiny bit of independence has been confiscated.

If they can do something safely and want to do it themselves, let them.

Ask before moving their belongings, changing how things are arranged or deciding what they “should” be wearing, eating, watching or doing.

There is a world of difference between making somebody’s drink easier to reach and turning into an unpaid cruise director.

The boring jobs are often the best jobs

Useful help is rarely glamorous.

It looks like:

  • Doing the laundry.
  • Changing the bedding.
  • Walking the dog.
  • Sorting the bins.
  • Picking up something they genuinely need.
  • Charging devices.
  • Putting appointments in a calendar.
  • Sitting quietly while they sleep instead of expecting a visit to be entertaining.

When somebody is recovering, reducing the background admin can be one of the kindest things you do.

So is warmth. If somebody needs help shifting up the bed, arranging pillows, getting dressed or doing some other awkward everyday thing, try not to make them feel as though they are an inconvenience because you are busy or frustrated. Caring can be exhausting and irritation is human; the ill person still should not have to carry the feeling that they are a burden as well.

Visitors, messages and the world outside

If everyone wants an update, consider having one person handle it.

The person who is ill should not have to send twelve versions of the same message because everyone means well separately.

You can also be the useful bad guy when needed: “They are tired today, let’s leave visiting until tomorrow.”

That is not rude. That is logistics.

Do not guess at the clinical stuff

This one matters.

Do not pass medication, change doses, decide something is safe because it looks fine, or improvise care the healthcare team has not asked you to do.

If you are unsure about something clinical, use the contact route you were given or ask the healthcare team.

If you think something may be urgent, seek appropriate medical help rather than trying to solve it from a practical guide on the internet.

And you are still a person too

Carers are very good at quietly disappearing into the job. Being scared, overwhelmed or fed up does not make you a bad person; it means this is hard.

You are allowed to eat, sleep, go home, ask somebody else to take a turn and admit that you are knackered.

You do not become more useful by running yourself completely into the ground.

Sometimes the kindest thing for both of you is another person doing the next shift, even if your version of “shift” is just sitting on the sofa, making tea and answering the door.

This is practical guidance, not medical advice. Caring needs vary enormously. Keep clinical decisions with the healthcare team and use the instructions and contact routes they have given you.

Printed from thesicklist.co.uk/guides/caring-for-someone-after-hospital